So the appointment was made for a week later to go and see the neuro-opthomologist. My mother in law was taking me this time. Again my mind was much too blurred to actually drive in a lot of traffic. I had a little shred of light lit in my heart and was feeling just a tiny bit better. I was trying so hard to remain optimistic! I had to for my sake. If I let all of these things get me down I would have quit a long time ago!
On a little side note I have to tell you that it is no joke going to a neuro-opthomologist. They are VERY specialized. When the other doctor’s office was making the appointment, they warned me to check that my insurance would cover it. When I called my insurance company they told me there were only 2 doctor’s within 200 miles of my house in this specialty. It was the doctor whom they had already made an appointment with or one in New York City. I live within and hour of “the city” so this is BIG!
So anyway, we are off to this appointment and arrive a little early which is what I like to do when I am stressed. I think that every ten minutes this doctor was scheduled to see about 4 people. He was running very behind as anyone would with this type of schedule. I was so anxious sitting there in a cold and uninviting office. There was no rug on the floors. The chair was not comfortable. No matter how nice you were to the staff they were down right nasty! I felt like yelling at them. I felt like saying, “don’t you know that I am here because my 4 month old baby cannot see? Where is your compassion?” I did not yell though. It is not what I do. I seethe inside instead!
After about an hour and a half we were called in. At this point I had convinced myself that the baby was seeing a little more now. I felt silly being there. Trust me there was still something going on. I was holding onto my mom dreams again. I know we all have them! We have to to make it through most days!
After he examined her he had said that Analiese had a visual maturation delay. I looked at him like he had 6 heads. I had no idea what this meant. I was lost! I guess he could tell because he went on to describe it to me. The mylon sheathing on her optic nerve had not developed fully. Over the next few months it should continue to develop. Right there I was thinking, “is he saying what I think he is? Will she be able to see?” I was jumping out of my skin trying so hard to listen and calm my thoughts. He then went on to tell me that by six months her vision should come in. He said we did not need to go back unless it doesn’t happen.
After this rather quick diagnosis my mother in law started asking questions. The most profound one was how common is this. His words are words that I will never forget. He told her, “We see three or four of these a year so it is pretty common!” Was he kidding? He is the only doctor in this specialty in the entire 200 mile radius and this is common? His idea of common were jaded!
In the end Analiese’s vision came in slowly. Now at almost two she can see wonderfully! I thank God each and every day for this! I am not sure that I could have handled another disability in my life at the time. Especially not one that would have been so life changing for all of us!
Becca
Links to the Full Series
Baby Blind Part I
Baby Blind Part II
Baby Blind Part III
Baby Blind Part IV
Baby Blind Part V
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HOORAY for happy endings! I’m so relieved I don’t even know what else to type at this point. And I’m always full of it, so that says a lot.
KathyB I would have told you that it all ended happy but I did not want to ruin it.
Becca
wow, I’m so glad it ended well for you. I can well imagine how stressed out you were though!
I am so glad this had a happy ending! I’ve been on the edge of my seat the whole time!
Like Zeemaid said, I bet you were stressed and to be honest, I don’t know that I could’ve gotten through all that stress. You are an amazing mom. Just wanted to let you know that
Seph thanks so much. I think that I am an average mom who just has amazing things to deal with. I just try really hard not to let life get me down too much! This has ended well and I thank God for that each and every day!
Becca
Zeemaid stress does not even begin to imagine the stress. I guess I should not assume that but the stress was great. All while trying to take care of a 4 month old, a 3 year old with CP and a 6 year old bipolar daughter! Oh life is just too much fun!
Becca
found you through KathyB. What a story. I was holding my breath hoping you’re daughter would be fine and thrilled to hear she is. I can’t even imagine what that must have felt like. Again, I’m so happy all is okay
Love this story! Love happy endings! Check out my new post She said, He said!
HOORAY!
I’m so glad this story had a happy ending.
I had to take my son to a pediatric neurologist at the Children’s Hospital once – sitting in that waiting room was the scariest 2 hours of my life. (My son was fine in the end, but had a very severe flat spot and had to wear a helmet to correct it for a few months when he was a baby.)
K I also have my little Emma who has CP. When the Dr. told us she should be functional in the long run but it would take years of therapy I cried and cried. Kids teach you a lot! We visited the helmet Dr. with Emma also but she did not need one. Thank God because Rob, my husband, told me that he was not sure he was mature enough to handle that! The truth is that I do not think he was! I assume that the helmet worked. They work miracles!
Becca
Oh my gosh…I am finally reading the rest of this series and I wanted to cry. So happy to hear that everything worked out.
Becca,
can you please give me neuro-opthomologist details, I need to take my son
I sent you a private email. You will be in my prayers. Please keep me posted.
Becca
Also hoping to get some neuro opthomologist details. We are headed to one this Wednesday.
Thank you so much for your story. In 3 days my 3 month daughter goes to an eye specialist. She is basically doing exactly what your little girl was doing…nothing. No recognition when we come near her, no focusing on objects, nothing. But your story gives us hope. Thank you