Askbecca

It has come to my attention that March is Disability Awareness Month.  Alright so I am 11 days late!  I just could not let it go without discussing it with all of you.  You see this is something that personally touches my family on a daily basis.  Two out of my three children have disabilities so you can see why I may find it so important.  It is something that I cannot to ignore.

Emma has mild, thank God, Cerebral Palsy.  As an infant she was not able to move the left side of her body.  Drinking bottles and eating were things that she had to be taught how to do.  She has had motor planning issues associated with this muscle weakness and has a very weak upper body.  This weakness impacts her speech, ability to run and play easily like other kids do and her ability to learn at the same rate as the other children.

As an infant we made sure that Emma received Early Intervention.  I feel that it is why she is doing as good as she is.  From the time she was 5 months old until the time she was three we would have 7-9 visits from therapists a week.  She would also go to a parent tot gymnastics program and counseling was available to anyone in the family.  New York really holds their Early Intervention program to high standards and I think that this is the only reason that Emma has done so well.

Today Emma still has some issues.  They are certainly noticable to me but if I did not tell you; you would never know.  Emma was mainstreamed in kindergarten this year.  She is behind the rest of the kids but still showing progress.  She can walk and talk although she gets tired much quicker then other kids.  She has broken out of her shell this year and socializes with the other kids.  I am so proud of how far we have come in 5 years.  5 years ago she could not move half of her body and now she is running with the other kids.  Even if it is a few paces behind she is still doing it!

Abigail has an emotional disability which is called bipolar.  This has been a tough one.  She rages, goes from extreme to extreme and is always angry.  In her fits she has told her sisters that she is going to kill them.  She throws all of the pictures off of her walls and her books off of their shelves.  She even has tried on more then one occasion to jump out of second story windows and has tried to jump out of a moving car.  She does not think through consequences and is VERY difficult.

The thing about Abigail that just breaks my heart is that she does not want to act like this.   She has cried many times after telling me that she wants to die.  She has told me that she tries so hard to keep it together.  She has told me that she just hates herself and that she is like this.  It breaks my heart.

We just started Abigail on medication.  I have read that with bipolar it is about the only way to assure that they will feel more balanced, more like you and I feel.  This is a disease that children suffer with.  I feel that medication is the same as giving a child medication for diabetes or a heart condition.  How could you not treat it.  The statistics of the suicide rate is enough to make me want my daughter on medication.  Medication also reduces the likelihood of future drug abuse.

So there you have it.   The most intimate parts of my life!  These kids are everything to me.  When I was discussing this with them they had a few things to add.

1. Please do not look at me funny.  I am a kids with feelings just like anyone else they get hurt.  With Abigail I think that they are hurt even more then your average kids.
2. Do not be afraid to play with kids who are different.  Once you are with them you will see that they are not as different as you thought!
3. Be kind and respectful.  Even though these kids are not what you would call “normal” they are kids!  They respond best to kindness just as any other kid would.

I think that we should all take a little time this month to think about these children and adults.  They are still people.  Their feelings are hurt with every weird eye people look at them with.  They are hurt a little deeper each time!  Please educate yourself and your children about disabilities and why it is so important to treat everyone, including the people who are different, with kindness and respect.

Becca

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